Other Publications

Other related publications

The following references relate to research done either citing or about PCOC or palliative care more generally. The references are sorted by year of publication (most recent on top), then by author(s). Many of these publications are authored by PCOC Chief Investigators.

If you know of other articles that are appropriate to list here please forward them to us at lindaf@uow.edu.au


Guo P, Dzingina M, Firth AM, Davies JM, Douiri A, O’Brien SM, Pinto C, Pask S, Higginson IJ, Eagar K and Murtagh FEM (2018) Development and validation of a casemix classification to predict costs of specialist palliative care provision across inpatient hospice, hospital and community settings in the UK: a study protocol. BMJ Open, 8 (3): e020071.

Dudgeon D (2018) The Impact of Measuring Patient-Reported Outcome Measures on Quality of and Access to Palliative Care. J Palliat Med, 21 (S1): S76-S80.

Virdun C, Luckett T, Lorenz KA and Phillips J (2018) National quality indicators and policies from 15 countries leading in adult end-of-life care: a systematic environmental scan. BMJ Support Palliat Care, 8 (2): 145-154.


Agar MR, Lawlor PG, Quinn S, Draper B, Caplan GA, Rowett D, Sanderson C, Hardy J, Le B, Eckermann S, McCaffrey N, Devilee L, Fazekas B, Hill M and Currow DC (2017) Efficacy of Oral Risperidone, Haloperidol, or Placebo for Symptoms of Delirium Among Patients in Palliative Care: A Randomized Clinical Trial. JAMA Internal Medicine, 177 (1): 34-42.

Clark K (2017) Care at the Very End-of-Life: Dying Cancer Patients and Their Chosen Family’s Needs. Cancers, 9 (2): 11.

Clark K, Willis A and Byfieldt N (2017) An Observational Study to Explore the Feasibility of Assessing Bereaved Relatives' Experiences Before and After a Quality Improvement Project to Improve Care of Dying Medical Inpatients. Am J Hosp Palliat Care, 34 (3): 263-8.

Currow DC, Phillips J and Agar M (2017) Population-based models of planning for palliative care in older people. Curr Opin Support Palliat Care, doi: 10.1097/SPC.0000000000000304 [Epub ahead of print].

Mather H, Guo P, Firth A, Davies JM, Sykes N, Landon A and Murtagh FE (2017) Phase of Illness in palliative care: Cross-sectional analysis of clinical data from community, hospital and hospice patients. Palliat Med, doi: 10.1177/0269216317727157 [Epub ahead of print].

Weston A, Kazimirski A, Kenley A, McLeod R and Gripper R (2017) Global innovations in measurement and evaluation. New Philanthropy Capital, London. [Includes a case study on producing tools and benchmarks for a whole sector featuring PCOC]


Australian Commission on Safety and Quality in Health Care. Delirium Clinical Care Standard. Sydney: ACSQHC, 2016. 

Clark K, Lam LT, Talley NJ, Quinn J, Blight A, Byfieldt N and Currow DC (2016) Assessing the Presence and Severity of Constipation with Plain Radiographs in Constipated Palliative Care Patients. Journal of Palliative Medicine, 19 (6): 617-21.

Currow D, Davidson PM and Higginson IJ (2016) "Outcomes" is not an oxymoron in hospice / palliative care. Journal of Palliative Medicine, 19 (11): 1128-9.

Davies JM, Gao W, Sleeman KE, et al. (2016) Using routine data to improve palliative and end of life care. BMJ Supportive & Palliative Care, doi:10.1136/bmjspcare-2015-000994.

Ekström M, Vergo MT, Ahmadi Z and Currow DC (2016) Prevalence of Sudden Death in Palliative Care: Data From the Australian Palliative Care Outcomes Collaboration. Journal of Pain and Symptom Management, 52 (2): 221-7.

Johnson MJ, Bland JM, Gahbauer EA, Ekström M, Sinnarajah A, Gill TM and Currow DC (2016) Breathlessness in Elderly Adults During the Last Year of Life Sufficient to Restrict Activity: Prevalence, Pattern, and Associated Factors. Journal of the American Geriatrics Society, 64 (1): 73-80.

Handley S, Sabri F and Kazimirski A (2016) Shared measurement: Greater than the sum of its parts. Produced by NPC for Inspiring Impact.

McCaffrey N, Bradley S, Ratcliffe J and Currow DC (2016) What Aspects of Quality of Life Are Important From Palliative Care Patients' Perspectives? A Systematic Review of Qualitative Research. Journal of Pain and Symptom Management, 52 (2): 318-28.

Wilcox N and McNeil JJ (2016) Clinical quality registries have the potential to drive improvements in the appropriateness of care. Medical Journal of Australia, 205 (10): S27-S29.


Clark K, Collier A and Currow DC (2015) Dying in Australian hospitals: will a separate national clinical standard improve the delivery of quality care? Australian Health Review, 39 (2): 202-4.

Ranse K, Yates P and Coyer F (2015) Factors influencing the provision of end-of-life care in critical care settings: development and testing of a survey instrument. Journal of Advanced Nursing, 71 (3): 697-709.


AIHW (2014) Palliative care services in Australia 2014. Cat. no. HWI 128. Canberra: Australian Institute of Health and Welfare.

Antunes B, Harding R, Higginson IJ; EUROIMPACT (2014) Implementing patient-reported outcome measures in palliative care clinical practice: a systematic review of facilitators and barriers. Palliative Medicine, 28 (2): 158-75.

Chan RJ (2014) Towards better end-of-life care: a major opportunity for nurses to contribute to the debate. International Journal of Nursing Studies, 51 (3): 355-6.

Chan RJ, Phillips J and Currow D (2014) Do palliative care health professionals settle for low-level evidence? Palliative Medicine, 28 (1): 8-9.

Chan RJ, Webster J, Phillips J and Currow DC (2014) The withdrawal of the Liverpool Care Pathway in the United Kingdom: what are the implications for Australia? Medical Journal of Australia, 200 (10): 573.

Johnson MJ, Bland JM, Davidson PM, Newton PJ, Oxberry SG, Abernethy AP and Currow DC (2014) The relationship between two performance scales: New York Heart Association Classification and Karnofsky Performance Status Scale. Journal of Pain and Symptom Management, 47 (3): 652-8.

McCaffrey N, Skuza P, Breaden K, Eckermann S, Hardy J, Oaten S, Briffa M and Currow D (2014) Preliminary development and validation of a new end-of-life patient-reported outcome measure assessing the ability of patients to finalise their affairs at the end of life. PLoS ONE, 9(4): e94316.

Phillips JL, Heneka N, Hickman L, Lam L and Shaw T (2014) Impact of a novel online learning module on specialist palliative care nurses' pain assessment competencies and patients' reports of pain: Results from a quasi-experimental pilot study. Palliative Medicine, 28 (6): 521-9.

Witt J, Murtagh FEM, de Wolf-Linder S, Higginson IJ and Daveson BA (2014) Introducing the Outcome Assessment and Complexity Collaborative (OACC) Suite of Measures: A Brief Introduction. King's College London, University of London.


McNamara BA, Rosenwax LK, Murray K and Currow DC (2013) Early admission to community-based palliative care reduces use of emergency departments in the ninety days before death. Journal of Palliative Medicine, 16 (7): 774-9.


Currow DC (2012) We Need Champions, Passionate Champions. Journal of Palliative Medicine, 15 (8): 842-3.  

McConigley R, Aoun S, Kristjanson L, Colyer S, Deas K, O'Connor M, Harris R, Currow D and Yates P (2012) Implementation and evaluation of an education program to guide palliative care for people with motor neurone disease. Palliative Medicine, 26 (8): 994-1000.


Aoun SM, Monterosso L, Kristjanson LJ and McConigley R (2011) Measuring symptom distress in palliative care: psychometric properties of the Symptom Assessment Scale (SAS). Journal of Palliative Medicine, 14 (3): 315-21.

Chapman Y (2011) Quality Improvement in Palliative Care. Australian Nursing Journal, 18 (8): 37.

Connell SE, Yates P and Barrett L (2011) Understanding the optimal learning environment in palliative care. Nurse Education Today, 31 (5): 472-6.

Kamal AH, Currow DC, Ritchie C, Bull J, Wheeler JL and Abernethy AP (2011) The value of data collection within a palliative care program. Current Oncology Reports, 13 (4): 308-15.

Mitchell G, Nicholson C, McDonald K and Bucetti A (2011) Enhancing palliative care in rural Australia: the residential aged care setting. Australian Journal of Primary Health, 17 (1): 95-101.

Currow DC, Abernethy AP, Bausewein C, Johnson M, Harding R and Higginson I (2011) Measuring the net benefits of hospice and palliative care: a composite measure for multiple audiences-palliative net benefit. Journal of Palliative Medicine, 14 (3): 264-5.

Earlier publications

Currow DC, Wheeler JL, Glare PA, Kaasa S and Abernethy AP (2009) A framework for generalizability in palliative care. Journal of Pain and Symptom Management, 37 (3): 373-86.

Tieman JJ, Sladek RM and Currow DC (2009) Multiple sources: mapping the literature of palliative care. Palliative Medicine, 23 (5): 425-31.

Tieman J, Sladek R and Currow D (2008) Changes in the quantity and level of evidence of palliative and hospice care literature: the last century. Journal of Clinical Oncology, 26 (35): 5679-83.

Abernethy AP, Shelby-James T, Fazekas BS, Woods D and Currow DC (2005) The Australia-modified Karnofsky Performance Status (AKPS) Scale: A Revised Scale for Contemporary Palliative Care Clinical Practice. BMC Palliative Care, 4: 7.

Palliative Care Australia (2005) Standards for providing quality palliative care for all Australians. Palliative Care Australia, Canberra.

Eagar K (1997) Defining an episode of care: a study of five case types. Australian Health Review, 20 (3): 105-19.

Fries BE, Scheider DP, Foley WJ, Gavazzi M, Burke R and Cornelius E (1994) Refining a case-mix measure for nursing homes: Resource Utilization Groups (RUG-IIl). Medical Care, 32 (7): 668-85.

Last reviewed: 13 September, 2018