Centre of Research Excellence in End of Life Care
National Health and Medical Research Council
Duration: October 2013 – September 2018
AHSRI is one of the collaborating partners in the Centre of Research Excellence in End of Life Care (CRE ELC) led by Professor Patsy Yates at the Queensland University of Technology. The CRE ELC brings together four leading palliative care and health service research centres that have established new strategic linkages with experts in chronic conditions, legal and ethical issues and health economics. The CRE ELC is generating new knowledge through three research programs focused on:
- health service interventions that will improve outcomes for people at end of life
- consumer and health care provider perspectives and decisions about treatments and use of health resources at end of life
- regulatory (legal, ethical and policy) frameworks that support decision makers to make appropriate end of life care decisions.
More information can be found on the Centre’s website www.creendoflife.edu.au/.
What we did
In 2016, research continued to utilise data from PCOC’s national longitudinal database The aim of the research is add to the evidence base needed to design effective service models, by examining the relationship between patient outcomes and a range of service (service location, models of care) and patient characteristics (demographics; clinical factors; carer support).
A total of six articles are currently under preparation, exploring the areas of:
- Differences in patients outcomes for palliative care provided in different settings (in hospital and in the home)
- Palliative care patient outcomes for specific diseases (end stage kidney disease, lung cancer, and haematological cancer)
- Comparisons of the different profile of symptoms and problems experienced by palliative patients with malignant and non-malignant disease more broadly.