This reference list has been prepared by the Australian Health Outcomes Collaboration.
Abraham B, d'Espaignet E and Stevenson C (1995) Australian Health Trends 1995. Australian Institute of Health and Welfare.
Altreja A and Rizk M (2012) Capturing patient reported outcomes and quality of life in routine clinical practice: ready for prime time? Minerva Gastroenterologica e Dietologica. Marc, Vol. 58, No.1, pp.19-24.
Allcock C (2015) Outcomes-based commissioning – much promise, but is it something that CCGs can actually deliver on? The Health Foundation, 24 September 2015. Accessed at http://www.health.org.uk/blog/outcomes-based-commissioning-%E2%80%93-much-promise-itsomething-ccgs-can-actually-deliver.
Armstrong B (1994) Getting health outcomes into state and national health policy, a national perspective. NSW Health Outcomes Conference, Sydney, 12-13 August 1994.
Australasian Rehabilitation Outcomes Centre (2016) AROC Reports. Available from: http://ahsri.uow.edu.au/aroc/reports/index.html accessed 23 August 2016.
Australian Bureau of Statistics (1994) National Aboriginal and Torres Strait Islander Survey: Details Findings. ABS Catalogue No. 419.0. ABS, Canberra.
Australian Bureau of Statistics (1997) 1995 National Health Survey: SF-36 population norms, Australia. Cat No 4399.0. ABS, Canberra.
Australian Commission on Safety and Quality in Health Care and Australian Institute of Health and Welfare (2010) Australian Safety and Quality Framework for Health Care. ACSQHC, Sydney.
Australian Commission on Safety and Quality in Health Care (2012) National Safety and Quality Health Service Standards (September 2012). ACSQHC, Sydney.
Australian Commission on Safety and Quality in Health Care and Australian Institute of Health and Welfare (2014) Exploring Healthcare Variation in Australia: Analyses Resulting from an OECD Study. Sydney: ACSQHC.
Australian Commission on Safety and Quality (2015a) Establishing National Priorities for Clinical Practice Guidelines 2015. Discussion paper prepared for the Australian Commission on Safety and Quality in Health Care.
Australian Commission on Safety and Quality in Health Care and National Health Performance Authority (2015b) Australian Atlas of Healthcare Variation. ACSQHC, Sydney.
Australian Health Ministers’ Advisory Council (1993) As quoted in: Health Outcomes Bulletin. No. 1, February 1994, 5.
Australian Health Ministers’ Advisory Council (1996) The Final Report of the Taskforce on Quality in Australian Health Care. AGPS, Canberra.
Australian Institute of Health and Welfare (1994) Health expenditure highlights. Health Expenditure Bulletin, No. 10, p.1.
Australian Institute of Health and Welfare (2009) Towards national indicators of safety and quality in health care. Cat. no. HSE 75. Canberra: AIHW.
Australian Institute of Health and Welfare (2014) Health expenditure Australia 2012-13. Health and Welfare Expenditure Series no. 52. Cat. no. HWE 61. Canberra: AIHW.
Batalden PB and Davidoff F (2007) What is “quality improvement” and how can it transform healthcare? Quality and Safety in Health Care. Vol. 16, No. 1, pp.2–3.
Batalden P, Nelson E and Roberts J (1994) Linking outcomes measurement to continual improvement: The serial "v" way of thinking about improving clinical care. Journal of Quality Improvement. Vol. 20, No. 4, pp.167-180.
Becker M, Diamond R and Sianfort F (1993) A new patient focused index for measuring quality of life in persons with severe and persistent mental illness. Quality of Life Research. Vol. 2, pp.239-251.
Benson DS (1992) Measuring Outcomes in Ambulatory Care. American Hospital Publishing, Inc.
Bergner M, Bobbitt RA, Carter WB and Gilson BS (1981) The Sickness Impact Profile: Development and final revision of a health status measure. Medical Care. Vol. 19, pp.787-805.
Black K, Lo Giudice D, Ames D, Barber B and Smith R (2001) Diagnosing Dementia. Alzheimer’s Association of Australia.
Black N (2013) Patient reported outcome measures could help transform healthcare. British Medical Journal. Vol. 346, pp. f167.
Bowling A (2005) Measuring Health: A Review of Quality of Life Measurement Scales (3rd Ed.). Milton Keynes, Open University Press.
Boyce MB and Browne JP (2013) Does providing feedback on patient-reported outcomes to healthcare professionals result in better outcomes for patients? A systematic review. Quality of Life Research. Vol. 22, No. 9, pp.2265-78.
Boyce MB and Browne JP (2015) Clinician Responses to Using Patient-Reported Outcome Measures for Quality Improvement. National Quality Measures Clearinghouse, Agency for Healthcare Research and Quality, 19 January 2015.
Boyce MB, Browne JP and Greenhalgh J (2014) Surgeon’s experiences of receiving peer benchmarked feedback using patient-reported outcome measures: a qualitative study. Implementation Science. Vol. 9, pp.84.
Brazier J, Roberts J and Deverill M (2002) The estimation of a preference-based measure of health from the SF-36. Journal of Health Economics. Vol. 21, pp.271-292.
Brazier J, Usherwood T, Harper R and Thomas K (1998) Deriving a preference-based single index from the UK SF-36 Health Survey. Journal of Clinical Epidemiology. Vol. 51, No.11, pp.1115-1128.
Brennan TA, Leape LL, Laird NM, Hebert L, Localio AR, Lawthers AG, Newhouse JP, Weiler PC and Hiatt HH (1991) Incidence of adverse events and negligence in hospitalised patients: results of the Harvard Medical Practice Study. New England Journal of Medicine. Vol. 324, No. 6, pp.370-376.
Brooks A, McParlane A and Tuess S (2015) Introducing the NSW arm of the Prostate Cancer Outcomes Registry Australia and New Zealand (PCOR-ANZ). Urological Society of Australia and New Zealand NSW Section ASM.
Browne J (2016) Individualised Patient Outcomes. Available from: http://www.kingsfund.org.uk/sites/files/kf/media/Professor%20John%20Browne%20-%20Individualised%20Patient%20Outcomes.pdf accessed 23 August 2016.
Bunker JP (1988) Is efficacy the gold standard for quality assessment? Inquiry. Vol. 25, No. 1, pp.51-8.
Bywood PT, Jackson-Bowers E, Muecke S (2011) Initiatives to integrate primary and acute health care, including ambulatory care services. PHCRIS Policy Issue Review. Adelaide: Primary Health Care Research and Information Service.
Cadet B (1994) History of the construction of a health indicator integrating social preference: The Quality of Well-Being Scale. Seventh Meeting of the International Network on Health Expectancy (REVES). Canberra, 23-25 February 1994.
Canadian Institute for Health Information (CIHI) (2000) Canadian Health Information Roadmap Initiative Indicators Framework 2000. Canadian Institute for Health Information and Statistics, Canada.
Cella D, Hahn EA, Jensen SE, Butt Z, Nowinski CJ and Rothrock N (2012) Methodological Issues In The Selection, Administration And Use Of Patient-Reported Outcomes In Performance Measurement In Health Care Settings. Department of Medical Social Sciences, Feinberg School of Medicine, Northwestern University, Chicago.
Centres for Medicare and Medicaid Services (2015) CMS Bundled Payments for Care Improvement Initiative Fact Sheet. Available from: https://www.cms.gov/Newsroom/MediaReleaseDatabase/Factsheets/2015-Fact-sheets-items/2015-08-13-2.html accessed 23 August 2016.
Centre for Health Service Development (CHSD) (2001) Pilot Testing of Tools: Guidelines for Undertaking Initial Needs Identification and developing a Service Coordination Plan. Centre for Health Service Development, University of Wollongong and Australian Institute for Primary Care, La Trobe University. Available from: http://aipc.latrobe.edu.au/pcpssc/.
Chen JJ (2015) Integrated Care: Patient reported outcome measures and patient reported experience measures - a rapid scoping review. NSW Agency for Clinical Innovation: Sydney.
Craft P, Primrose J, Lindner J and McManus P (1996) Patterns of surgical treatment of primary breast cancer in Australian women in 1993: Analysis using Medicare statistics. 23rd Annual Scientific meeting of the Clinical Oncological Society of Australia inc. Brisbane Convention and Exhibition Centre, 27-29 November 1996.
Cromwell D, Haball J, Viney R and Hindle D (1995) Illawarregon, Development of a Model to Assist Priority Setting by an Area Health Service, Centre for Health Service Development, Wollongong.
Cummins RA (1993) Comprehensive Quality of Life Scale for Adults (4th Ed.). Deakin University, Deakin.
De Haes JC, Van Knippenenberg FC, Neijt JP (1990) Measuring psychological and physical distress in cancer patients: structure and application of the Rotterdam Symptom Checklist. British Journal of Cancer. Vol. 62, pp.1034-8.
Department of Health and Ageing (2007) The National Evaluation of the Second Round of Coordinated Care Trials Final Report -Australian Coordinated Care Trials 2007: Part 1 – Executive Summary – Coordination of Care and Efficiency of Healthcare: Lessons from the Second Round of Australian Coordinated Care Trials ISBN: 1-74186-288-4 Online ISBN: 1-74186-289-2 Publications Number: P3 - 2052.
Devlin N, Shah K, Feng Y, Mulhern B and van Hout B (2016) Valuing Health-Related Quality of Life: An EQ-5D-5L Value Set for England. Research Paper 16/01, Office of Health Economics, London.
Devlin NJ and Appleby J (2010) Getting the most out of PROMs: Putting health outcomes at the heart of NHS decision-making. The King’s Fund, London.
Dixon P, Heaton J, Long A and Warburton A (1994) Reviewing and applying the SF-36. Outcomes Briefing. Vol. 4, pp.3-24.
Donabedian A (1980) Basic approaches to assessment: Structure, process, and outcome. In Donabedian A (1980) The Definition of Quality and Approaches to its Assessment: Explorations in Quality Assessment and Monitoring. Vol. 1. Health Administration Press.
Donabedian A (1992) The role of outcomes in quality assessment and assurance. Quality Review Bulletin. November, pp.356-60.
Eagar K, Owen A, Green J, Cromwell D, Poulos R, Gordon R, Quinsey K, Adamson L and Fildes D (2001) A National Measure of Functional Dependency for Home and Community Care Services in Australia: Stage 2 report of the HACC dependency data items project. Centre for Health Service Development, University of Wollongong.
Eagar K (2014) Measuring outcomes in pain management. Pain and Palliative Care Conference, Southbank Institute of Technology, Brisbane, 3-5 December 2014.
Emery M-P, Perrier L-L, Acquadro C (2005) Patient-Reported Outcome and Quality of Life Instruments Database (PROQOLID): Frequently asked questions. Health and Quality of Life Outcomes. Vol. 3, pp.12.
Entwistle V (1995) Paper delivered to Cochrane Collaborative Review Group on Communicating Effectively with Consumers, sponsored by the Public Health Division, Melbourne, 2-3 May 1995.
EuroQol Group (1990) EuroQol: a new facility for measurement of health-related quality of life. Health Policy. Vol. 16, pp.199-208.
Feng Y, Devlin N, Shah K, Mulhern B and van Hout B (2016) New Methods for Modelling EQ-5D-5L Value Sets: An Application to English Data. Research Paper 16/02, Office of Health Economics, London.
Feeny D, Furlong W and Torrance G (1996a) Health Utilities Index Mark 2 and Mark 3 (HUI2/3) 15-item questionnaire for self-administered, self-assessed usual health status, Centre for Health Economics and Policy Analysis. McMaster University, Hamilton.
Feeny D, Torrance G and Furlong W (1996b) Health Utilities Index In Spilker B (ed.). Quality of Life and Pharmacoeconomics in Clinical Trials. Lippincott-Raven Publishers, Philadelphia.
Field M and Lohr K (1992) Guidelines for Clinical Practice: From Development to Use. Institute of Medicine, National Academy Press, Washington DC.
Fillenbaum GG (1988) Multidimensional Functional Assessment of Older Adults: The Duke Older Americans Resources and Services Procedures. Lawrence Erlbaum Associates, Hillsdale, NJ.
Fillenbaum GG and Smyer MA (1981) The development, validity and reliability of the OARS Multidimensional Functional Assessment Questionnaire. Journal of Gerontology. Vol. 36, pp. 428-34.
Food and Drug Administration (2009) Guidance for Industry – Patient-Reported Outcome Measures: Use in Medical Product Development to Support Labeling Claims. U.S. Department of Health and Human Services, Food and Drug Administration.
Fries JF, Spitz P, Kraines RG and Holman HW (1980) Measurement of patient outcome in arthritis. Arthritis and Rheumatology. Vol. 23, No. 2, pp.137-45.
Garellick G, Kärrholm J, Lindahl H, Malchau H, Rogmark C, Rolfson O (2015) The Swedish Hip Arthroplasty Register: Annual Report 2014.
Gliklich R, Dreyer N, Leavy M, eds. Registries for Evaluating Patient Outcomes: A User’s Guide. Third edition. Two volumes. (Prepared by the Outcome DEcIDE Center [Outcome Sciences, Inc., a Quintiles company] under Contract No. 290 2005 00351 TO7.) AHRQ Publication No. 13(14)-EHC111. Rockville, MD: Agency for Healthcare Research and Quality. April 2014.
Gonçalves Bradley D, Gibbons C, Ricci-Cabello I, et al (2015) Routine provision of information on patient-reported outcome measures to healthcare providers and patients in clinical practice (Protocol). Cochrane Database of Systematic Reviews. 2015; Issue 4.
Green J, Eagar K, Owen A, Gordon R and Quinsey K (2006) Towards a measure of function for Home and Community Care Services in Australia: Part 2 – Evaluation of the screening tool and assessment instruments. Australian Journal of Primary Health. Vol. 12, No.1, pp. 82-8.
Grimshaw JM and Russell IT (1993) Effect of clinical guidelines on medical practice: a systematic review of rigorous evaluations. Lancet. Vol. 342, pp.1317–22.
Hamilton BB, Granger CV, Sherwin FS, Zielezny M and Tashman JS (1987) A uniform national data system for medical rehabilitation. In M. Fuhrer (Ed.), Rehabilitation outcomes: Analysis and measurement (pp.137–147). Baltimore: Brookes.
Harrison Health Research (2004) South Australian Health Omnibus Survey (HOS) Report. South Australia Department of Health, Adelaide.
Harvey K (2003) “Saving” the Australian Pharmaceutical Benefits Scheme. Monash University, Health Economics Unit.
Harvey R (1991) Making it Better: Strategies for Improving the Effectiveness and Quality of Health services in Australia , Background Paper No. 8, National Health Strategy, Melbourne.
Harvey R (1994) A Pilot Study to Integrate Health Outcomes and Health Interventions, AIHW.
Harvey R (1995) Health Outcomes, quality assurance and information: ‘Doing the do-able’ or ‘You've got to start from here!’ part 1. Health Outcomes Bulletin. Spring, No. 6, p.22.
Hawthorne G (2006a) Multi-attribute utility measures of quality of life. In Thomas et al. (2006) Continence Outcomes Measurement Suite, DHA.
Hawthorne G (2006b) Measuring incontinence in Australia. Australian Government Department of Health and Ageing, Canberra.
Hawthorne G, Osborne RH, Taylor A and Sansoni J (2007) The SF36 Version 2: critical analyses of population weights, scoring algorithms and population norms. Quality of Life Research. Vol. 16, No.4, pp.661-73.
Hawthorne G, Richardson J and Day N (2000a) A comparison of the Assessment of Quality of Life (AQoL) with four other generic utility instruments. XII Medical Symposium ‘Quality of Life Measurement in Clinical Studies’, Helsinki, Finland, pp.358-3760.
Hawthorne G, Richardson J and Osborne R (1999) The Assessment of Quality of Life (AQoL) instrument: a psychometric measure of health related quality of life. Quality of Life Research. Vol. 8, pp.209-24.
Hawthorne, Richardson J, Osborne R, Day N and McNeil H (2000b) Construction and Utility Scaling of the Assessment of Quality of Life (AQoL) Instrument. Centre for Health Program Evaluation, Melbourne.
Hawthorne G and Sansoni J (2004) Incontinence and quality of life. Health Outcomes 2004: Perspectives on Population Health Conference. Canberra, 15-16 September 2004.
Health and Social Care Information Centre (2015) Summary – Benefits case study for Patient Reported Outcomes Measures (PROMS) outputs. NHS,UK.
Henderson G and Gray A (1994) The Tharawal Aboriginal Family Environmental Health Survey. Australian Institute of Aboriginal and Torres Strait Islander Studies, ANU, Canberra.
Hirsch N et al. (1994) Minimal Access Surgery: an Update. A Discussion Paper, AGPS.
Horn SD, DeJong G and Deutscher D (2012) Practice-Based Evidence Research in Rehabilitation: An Alternative to Randomized Controlled Trials and Traditional Observational Studies. Archives of Physical Medicine and Rehabilitation. Vol. 93 (Suppl. 1), pp.S127-S37.
Horn S and Gassaway J (2007) Practice-Based Evidence Study Design for Comparative Effectiveness Research. Medical Care. Vol. 45 (Suppl. 2), pp.S50-S57.
Hutchinson A (1998) Primary care outcome assessment- ‘the keep it simple’ approach. National Health Outcomes Conference: Implementing the Health Outcomes Approach, Canberra, 7-8 August 1998.
Hyland ME (1991) The Living With Asthma Questionnaire. Journal of Respiratory Medicine. Vol. 85 (Suppl. B), pp.13-16.
Jenkinson C, Stewart-Brown S, Petersen S and Paice C (1999) Assessment of the SF-36 Version 2 in the United Kingdom. Journal of Epidemiology and Community Health. Vol. 53, No. 1, pp.46-50.
Kaplan RM (1993) Quality of life assessment for health resource allocation. Harkness Health Conference. Canberra, 8-9 December 1993.
Kaplan RM, Alcaraz JE, Anderson JP and Weisman M (1996) Quality-adjusted life years lost to arthritis: effects of gender, race, and social class. Arthritis Care Res. Vol. 9, No.6, pp.473-82.
Kaplan RM, Bush JW and Berry CC (1976) Health status: Types of validity for Index of Well-being. Health Service Research. Vol. 11, No. 4, pp.478-507.
Katz S et al. (1959) Index of independence in activities of daily living (ADL). In Wilkin D, Hallam L, and Doggett MA (eds.) (1992) Measures of Need and Outcome for Primary Health Care. Oxford University Press, UK.
Kessler R (1997) Kessler's Psychological Distress Scale. Department of Health Care Policy, Harvard Medical School, Boston.
Kessler RC, Andrews G, Colpe LJ, Hiripi E, Mroczek DK, Normand SL, Walters EE and Zaslavsky AM (2002) Short screening scales to monitor population prevalences and trends in non-specific psychological distress. Psychological Medicine. Vol. 32, No. 6, pp.959-76.
Kessler R and Mroczek D (1994) Final Version of our Non-specific Psychological Distress Scale [memo dated 10/3/94]. Ann Arbor (MI): Survey Research Center of the Institute for Social Research, University of Michigan.
Kind P (1996) The EuroQol Instrument: An index of health- related quality of life. In Spilker, B (ed.) Quality of Life and Pharmacoeconomics in Clinical Trials. Lippincott-Raven Publishers, Philadelphia, pp.191-201.
Kingi T and Durie MH (1998) A framework for measuring Māori mental health outcomes (TPH 97/5). Palmerston North: Te Pūmanawa Hauora, School of Māori Studies, Massey University.
Kingi T and Durie MH (2000) Hua Oranga: A Māori Measure of Mental Health Outcomes (TPH 00/01). Palmerston North: Te Pūmanawa Hauora, School of Māori Studies, Massey University.
Kingman S (1994) Quality control for medicine. New Scientist. Vol. 143, pp.22-6.
Kolstad A (1994) Quality of Life: The concept and how to measure it. Australian Association for Social Research Conference. University of Tasmania, 25-27 January, 1994.
Kroenke K, Spitzer RL and Williams JB (2001) The PHQ-9: validity of a brief depression severity measure. Journal of General Internal Medicine. Vol. 16, No.9, pp.606-13.
Lavallee DC, Chenok KE, Love RM, Petersen C, Holve E, Segal CD and Franklin PD (2016) Incorporating Patient-Reported Outcomes Into Health Care To Engage Patients And Enhance Care. Health Affairs. Vol. 35, No. 4, pp.575-582.
Leape LL (1989) Unnecessary surgery. Health Services Research. Vol. 24, No. 3, pp.351-407.
Lee C (2002) Women’s Health Australia, seven years on: Contributions to the evidence base for health outcomes policy and practice. Health Outcomes 2002: Current Challenges and Future Frontiers. Canberra, November 2002.
LoGiudice D, Smith K, Thomas J, Lautenschlager NT, Almeida OP, Atkinson D and Flicker L (2006) Kimberley Indigenous Cognitive Assessment tool (KICA): development of a cognitive assessment tool for older indigenous Australians. International Psychogeriatrics. Vol. 18, No.2, pp.269-80.
Lorig K, Stewart A, Ritter P, Gonzalez V, Laurent D and Lynch J (1996) Outcome Measure for Health Education and Other Health Care Interventions, Sage Publications, 1000 Oakes CA.
Lugtenberg M, Burgers JS and Westert GP (2009) Effects of evidence-based clinical practice guidelines on quality of care: a systematic review. Quality and Safety in Health Care. Vol. 18, No. 5, pp.385-92.
Lundström M and Karlskrona R (2015) Three National PROM-projects in Sweden. PROM Seminar, Stockholm 2015.
Mahoney FI and Barthel DW (1965) Functional Evaluation: The Barthel Index. Maryland State Medical Journal. Vol. 14, pp.61-65.
Marosszeky JE and Eagar K (2001) The Australian Rehabilitation Outcome Centre (AROC). Health Care in Perspective 2001 – Incorporating the 13th National Casemix Conference. Hobart, 16-19 September 2001.
Marosszeky N (2006) Reviews of SF-12, SF-36, WHOQOL-100, WHOQOL-Bref. In Thomas et al. (2006) Continence Outcomes Measurement Suite Project: Final Report, DHA.
Mathers C (1999) Australian Burden of Disease – implications for priority setting. Conference Proceedings - Health Outcomes: Integrating the Elements. Australian Health Outcomes Collaboration, Canberra (CD-ROM).
Meenan RF, Gertman PM and Mason JH (1980) Measuring health status in arthritis: The Arthritis Impact Measurement Scale. Arthritis Rheumatism. Vol. 23, No. 2, pp.146-152.
McDowell I (2006) Measuring Health: A Guide to Rating Scales and Questionnaires. Oxford University Press, edition 3.
McLaws ML, Gold J, King K, Irwig LM and Berry G (1988a) The prevalence of nosocomial and community acquired infections in Australian hospitals. Medical Journal of Australia. Vol. 149, No. 11-12 pp.582-590.
McLaws ML, Irwig LM, Mock P, Berry G and Gold J (1988b) Predictors of surgical wound infection in Australia: a national study. Medical Journal of Australia. Vol. 149, No. 11-12, pp.591-595.
Mishra G (1997) Hysterectomy and incontinence in middle age women. Conference Proceedings: Managing and Measuring Health Outcomes: From Policy to Practice. Canberra, 31 Oct – 1 Nov, 1997.
Murray CJL and Lopez AD (1996) The Global Burden of Disease. The Harvard School of Public Health on behalf of the World Health Organisation and The World Bank, Harvard.
Nancarrow S (1999) Health Outcomes: Issues for community care. Workshop: Health Outcomes and Community Care. Canberra, 26 February 1999.
Nelson EC, Dixon-Woods M, Batalden PB, et al (2016) Patient focused registries can improve health, care, and science. British Medical Journal. Vol. 354, pp.i3319.
National Health Information Standards and Statistics Committee (NHISSC) (2009) The National Health Performance Framework (2nd Edition).
National Health and Medical Research Council (1995) Guidelines for the Development and Implementation of Clinical Practice Guidelines. 1st Ed., Commonwealth of Australia, AGPS.
National Health and Medical Research Council (1999) A Guide to the Development, Implementation and Evaluation of Clinical Practice Guidelines. Commonwealth of Australia, AGPS.
National Health and Medical Research Council (2000) Health and Medical Research Strategic Review. Implementation of the Government’s response: Final Report. Commonwealth of Australia, AGPS.
National Health and Medical Research Council (2014) Annual Report on Australian Clinical Practice Guidelines. Canberra: National Health and Medical Research Council.
National Health Performance Authority (2016) Hospital Performance: Costs of acute admitted patients in public hospitals from 2011-12 to 2013-14 (In Focus).
National Health Performance Committee (NHPC) (2001) National Health Performance Framework Report, Queensland Health, Brisbane.
National Health Service (NHS) England (2016) National Patient Reported Outcome Measures (PROMs) Programme Consultation (Publications Gateway Reference: 04478). Available from: https://www.engage.england.nhs.uk/consultation/proms-programme accessed 9 August 2016 accessed 9 August 2016.
National Joint Registry (2016) NHS England’s national PROMs programme consultation: Response from the British Orthopaedic Association (BOA), British Hip Society (BHS), British Association for Surgery of the Knee (BASK), British Elbow and Shoulder Society (BESS), British Orthopaedic Foot and Ankle Society (BOFAS) and the National Joint Registry for England, Wales, Northern Ireland and the Isle of Man (NJR). Available from: http://www.njrcentre.org.uk/njrcentre/NewsandEvents/NJRrespondstoNHSEngland%E2%80%99sPROMsconsultation/tabid/407/Default.aspx accessed 9 August 2016.
National Quality Forum (2013) Patient Reported Outcomes (PROs) in Performance Measurement. Available from: http://www.qualityforum.org/Publications/2012/12/PatientReported_Outcomes_in_Performance_Measurement.aspx accessed 9 August 2016.
National Mental Health Information Development Expert Advisory Panel (2013) Mental Health National Outcomes and Casemix Collection: NOCC Strategic Directions 2014 – 2024. Commonwealth of Australia, Canberra.
National Mental Health Strategy (2009) National mental health benchmarking project evaluation report July 2009. Canberra: Dept. of Health and Ageing
NSW Health (1994) Report on the 1993 NSW Diabetes Outcomes Workshop (NDOW), NSW Health, Sydney.
Marin T, Taylor A and Gill T (2009) A Population Profile of Quality of Life in South Australia - Population Norms for 2008 using the SF36 Version 2. Population Research and Outcome Studies Unit. South Australian Department of Health, Adelaide.
O’Boyle CA, Browne J, Hickey A, McGee HM and Joyce CRB (1993) The Schedule for the Evaluation of Individual Quality of Life (SEIQoL): a Direct Weighting procedure for Quality of Life Domains (SEIQoLDW): Administration Manual. Department of Psychology, Royal College of Surgeons in Ireland, Dublin.
O’Boyle C and Ring L (2005) Individual Quality of Life (IQoL): Theory and Measurement. 11th Annual National Health Outcomes Conference, 17-18 August 2005, Canberra.
Porter ME (2010) What is value in health care? New England Journal of Medicine. Vol. 363, pp. 2477-81.
Porter ME (2016) The Strategy to Transform HealthCare and The Role of Outcomes. Fourth ICHOM Conference, London, UK, 17 May 2016.
Porter ME, Larsson S, Lee TH (2016) Standardizing Patient Outcomes Measurement. New England Journal of Medicine. Vol. 374, No. 6, pp.504-6.
Jackson Pulver L, Broe GA, Grayson D, Chalkley S, Flicker L, Daylight G, Mack H, Radford K (2012) Dementia screening for urban Aboriginal Australians: the modified Kimberley Indigenous Cognitive Assessment (mKICA) Sydney: Dementia Collaborative Research Centres.
Radosevich D and Husnik M (1995) An abbreviated health status questionnaire: HSQ-12. Update. Vol. 2, No. 1.
Ramey DR, Raynauld J-P and Fries JF (1992) The Health Assessment Questionnaire 1992: Status and review. Arthritis Care and Research. Vol. 5, pp.119-29.
Reid B et al. (1999) Relative Utilisation Rates of Hysterectomy and Links to Diagnoses. DHAC, Canberra.
Reinhardt UE (1990) The social perspective. In Heithoff KA.and Lohr KN (eds.) (1990) Effectiveness and outcomes in health care. National Academy Press, Washington DC.
Richardson J, Iezzi A, Khan MA, Chen G, Maxwell A (2016) Measuring the Sensitivity and Construct Validity of 6 Utility Instruments in 7 Disease Areas. Medical Decision Making. Vol. 36, No. 2, pp.147-59.
Ross B et al. (1999) Health Expenditure: Its Management and Sources (Occasional Papers: Health Financing Series Vol 3). DHAC, Canberra.
Rosser RM (1988) A health index and outcome measure. In Walker SR and Rosser RM (eds.) (1988) Quality of Life: Assessment and Application. MTP, Lancaster.
Rosser R (1993) A health index and output measure. In Walker S and Rosser R (eds.) Quality of Life Assessment: Key Issues in the 1990s. Kluwer Academic Publishers, Dordrecht.
Rubenach S (1999) Health outcomes for the elderly: community and domiciliary care. Workshop: Health Outcomes and Community Care. Canberra, 26 February 1999.
Ruta DA, Garratt AM, Leng M, Russell IT, MacDonald LM (1994) A new approach to the measurement of quality of life. The Patient-Generated Index. Medical Care. Vol. 32, No.11, pp.1109-26.
Sansoni J (2016) The Australian Dementia Outcomes Measurement Suite. Poster presentation at ICHOM Conference, 16-17 May 2016, London.
Sansoni J, Williams K, Morris D and Thompson C (2016) Development of prioritised patient experience indicators for the Patient Centred Quality Cancer System Program: Technical Report. Centre for Health Service Development, Australian Health Services Research Institute, University of Wollongong.
Sansoni J (2015) Health Outcomes: An Overview from an Australian Perspective. Australian Health Outcomes Collaboration, Australian Health Services Research Institute, University of Wollongong.
Sansoni J, Grootemaat P and Duncan C (2015) Question Prompt Lists in health consultations: A review. Patient Education and Counselling. Vol. 98, No.12, pp.1454–64.
Sansoni J, Hawthorne G, Fleming G and Marosszeky N (2013a) The Revised Faecal Incontinence Scale: A clinical validation of a new short measure for assessment and outcomes evaluation. Diseases of Colon and Rectum. Vol. 56, No.5, pp.652-9.
Sansoni J, Samsa P, Duncan C, Westera A, Grootemaat P, Shadbolt B and Eagar K (2013b) Final project report on the validation and field trials of the assessment framework and tool for aged care. Centre for Health Service Development, Australian Health Service Research Institute, Wollongong, Australia.
Sansoni J, Hawthorne G, Marosszeky N, Moore K, Fleming G and Owen E (2011) Validation and Clinical Translation of the Revised Continence and Patient Satisfaction Tools: Final Report. Centre for Health Service Development, University of Wollongong.
Sansoni J, Marosszeky N, Fleming G and Sansoni E (2010) Selecting Tools for ACAT Assessment: A Report for the Aged Care Assessment Program (ACAP) Expert Clinical Reference Group. Centre for Health Service Development, University of Wollongong. Report for the Aged Care Assessment Program, Australian Government Department of Health and Ageing.
Sansoni J, Marosszeky N, Jeon Y-H, Chenoweth L, Hawthorne G, King M, Budge M, Zapart S, Sansoni E, Senior K, Kenny P, Low L (2007) Final Report: Dementia Outcomes Measurement Suite Project. Centre for Health Service Development, University of Wollongong.
Sansoni J (2004) The use and value of HRQOL measurement for the Australian health system. Harmonizing International Health-Related Quality of Life (HRQOL) Research, 11th Annual Conference of the ISOQOL, October 16-19, Hong Kong.
Sansoni J and Costi J (2001) SF-36 Version 1 or Version 2: The need for Australian normative data. Proceedings of Health Outcomes 2001 - The Odyssey Advances: 7th Annual National Health Outcomes Conference. Canberra, 27-28 June 2001.
Sansoni J (1997) The use of the SF-36 in population health surveys: The Australian experience. In Proceedings: State of the Art health Outcomes Conference. MOT, San Francisco, May 1997.
Sansoni J (1996) The Centrality of Health Outcomes Measurement. In Integrating Health Outcomes Measurement in Routine Health Care Conference Proceedings. Australian Institute of Health and Welfare, Canberra, 13-14 August 1996.
Sansoni J (1995) Quality of life: Measure for Measure. In Health Outcomes and Quality of Life Measurement: Conference Proceedings. Australian Institute of Health and Welfare, Canberra, August 14-15 1995.
Schamber EM, Takemoto SK, Chenok KE and Bozic KJ (2013) Barriers to completion of Patient Reported Outcome Measures. J Arthroplasty. Vol. 28, No.9, pp.1449-53.
Schipper H, Clinch J and McMurray A (1984) Measuring the quality of life in cancer: the Functional Living Index-Cancer, development and validation. Journal of Clinical Oncology. Vol. 2, pp.472-483.
Schuler T and Miller AA (2014) PROsaiq: A Smart Device-Based and EMR-Integrated System for Patient-Reported Outcome Measurement in Routine Cancer Care. Journal of Radiation Oncology Informatics. Vol. 6, No.1, pp.111-31.
Scott KM, Sarfati D, Tobias MI and Haslett SJ (2000) A challenge to the cross-cultural validity of the SF-36: A comparative factor analysis in Maori, Pacific and New Zealand European ethnic groups. Social Science and Medicine. Vol. 51, pp. 1655-64.
Senior KA (1999) Cross cultural issues in measuring health and community care outcomes. Workshop: Health Outcomes and Community Care. Canberra, 26 February 1999.
Shadbolt et al. (1996a) Selecting Instruments and Measures for the Co-ordinated Care Trials Workshop. Canberra, July 1996.
Shadbolt et al. (1996b) First Report from the ACT Continuum of Care Project. ACTH&CC.
Shabolt B, McCallum J and Singh M (1997) Health Outcomes by Self-report: Validity of the SF-36 among Australian Hospital Patients. ACT Department of Health and Community Care, Canberra.
Shadbolt B, Merefield S, Wang V, Smith P (2015) Life after arthroplasty. OrthoACT, The Trauma and Orthopaedic Research Unit, Centre for Advances in Epidemiology & IT, The Canberra Hospital, 4 December 2015.
Sintonen H (1994) The 15D measure of health-related quality of life: reliability, validity and sensitivity of its health state descriptive system. National Centre for Health Program Evaluation, Melbourne.
Sintonen H (1995) The 15D‑measure of health‑related quality of life. II. Feasibility, reliability and validity of its valuation system. National Centre for Health Program Evaluation, Working Paper 42, Melbourne.
Sintonen H (2001) The 15D instrument of health-related quality of life: properties and applications. Annals of Medicine. Vol. 33, pp.328-336.
Sintonen H and Pekurinen M (1993) A fifteen-dimensional measure of health-related quality of life (15D) and its applications. In Walker S and Rosser R (eds.) Quality of Life Assessment: Key Issues in the 1990s. Kluwer Academic Publishers, Dordrecht.
Slutsky J (1998) Guidelines and outcomes: AHCPR’s National Guideline Clearinghouse. In Sansoni J and Tilley L (Eds.) Implementing the Health Outcomes Approach (Conference Proceedings). AHOC, November 1998.
Stanford Patient Education Research Center (2000) Sample Questionnaire for the Chronic Disease Self-Management Program. Palo Alto, CA.
Stineman MG, Jette A, Fiedler R, Granger C (1997) Impairment-specific dimensions within the Functional Independence Measure. Archives of Physical Medicine and Rehabilitation. Vol. 78, No. 6, pp.636–43.
Te Pou (2016) Mental health outcome measures. Available from: http://www.tepou.co.nz/outcomesand-information/mental-health-outcome-measures/28 accessed 9 August 2016.
Thomas S, Nay R, Moore K, Fonda D, Hawthorne G, Marosszeky N and Sansoni J (2006) Continence Outcomes Measurement Suite Project (Final Report). Department of Health and Ageing, Canberra.
Torrance GW, Furlong W, Feeny D and Boyle M (1995) Multi-attribute preference functions. Health Utilities Index. Pharmacoeconomics. Vol. 7, No.6, pp.503-20.
Tracey EA, Roder DM, Currow DC (2012) What factors affect the odds of NSW cancer patients presenting with localised as opposed to more advanced cancer? Cancer Causes and Control. Vol. 23, No. 2, pp.255-62.
Vallance-Owen AJ (2008) PROMs promote health gain and patient involvement. British Medical Journal. Vol. 336, No.7640, pp.344.
Viet CT and Ware JE Jr (1983) The structure of psychological distress and well-being in the general population. Journal of Consulting and Clinical Psychology . Vol. 51, No. 5, pp.730-42.
Walker SR and Rosser RM (eds.) (1992) Quality of Life Assessment, Key Issues in the 1990s. Kluwer Academic Publishers, Hingham, USA.
Ware J (2003) Standardizing health metrics: The SF-36 Health Survey and beyond. In Sansoni, J and Tilley L (Eds.) Conference Proceedings: Health Outcomes 2003: The Quest for Practice Improvement. Canberra, 20-21 August, 2003.
Ware JE et al. (1996) The SF-36 Health Survey Annotated Bibliography: First Edition (1988-1995). The Health Institute, NEMC, Boston.
Ware JE Jnr, Kosinski M, Keller SD (1996) A 12-item short form health survey: Construction of scales and preliminary tests of reliability and validity. Medical Care. Vol. 34, No.3, pp.220-33.
Ware JE and Kosinski M (1996) SF-36 Health Survey (Version 2.0) Technical Note. The Health Institute, Boston, MA.
Ware JE, Kosinski M and Dewey JE (2000) How to Score Version 2 of the SF-36 Health Survey. QualityMetric Inc., Lincoln, RI.
Ware JE and Sherbourne CD (1992) The MOS 36-item short form health status survey (SF-36): 1, Conceptual framework and item selection. Medical Care. Vol. 30, pp.473-83.
Weldring T and Smith SMS (2013) Patient-Reported Outcomes (PROs) and Patient-Reported Outcome Measures (PROMs). Health Service Insights. Vol. 6, pp.61-68.
Wennberg JE (1987) The paradox of appropriate care. Journal of the American Medical Association. Vol. 258, No. 18, pp.2568-9.
Wennberg JE (1990) On the need for outcomes research and the prospects for evaluative clinical sciences. In Andersen TF and Mooney G (1990) The Challenges of Medical Practice Variations. McMillan Press, London.
Williams K, Sansoni J, Morris D, Grootemaat P and Thompson C (2016) Patient-reported outcome measures: Literature review. Centre for Health Service Development, Australian Health Services Research Institute, University of Wollongong.
Wing JK, Beevor AS, Curtis RH, Park SB, Hadden S, Burns A (1998) Health of the Nation Outcome Scales (HoNOS). Research and development. British Journal of Psychiatry. Vol. 172, pp.11-8.
Wohlin J (2014) SVEUS – National collaboration for value-based reimbursement and monitoring of healthcare in Sweden. OECD Expert group meeting on payment systems, 7 April 2014. IVBAR, Institute, Stockholm.
World Health Organisation (1981) Program Evaluation: Guiding Principles. Health For All. Series No 6, WHO, Geneva.
World Health Organization (1996) WHOQOL-BREF, Programme on Mental Health, WHO Geneva.
Wu AW, Jensen RE, Salzberg C, Snyder C (2013) Advances in the Use of Patient Reported Outcome Measures in Electronic Health Records. Center for Health Services and Outcomes Research, Johns Hopkins Bloomberg School of Public Health, Baltimore.