National Dementia Quality Care Initiative

Evaluation of the National Quality Dementia Care Initiative (Alzheimer’s Australia)

Duration: October 2010 – December 2014

Download the evaluation reports

The following reports are available to download:

Westera A, Thompson C, Morris D, Dawber J and Eagar K (2012) Report of the Interim Evaluation of the Consumer Dementia Research Network. Centre for Health Service Development, University of Wollongong.

Westera, A, Thompson C, Morris D, Blissett C and Navakatikyan M (2013) Evaluation of the Consumer Dementia Research Network – Final Report. Centre for Health Service Development, University of Wollongong.

Westera, A, Thompson C and Morris D (2014) Evaluation of the Alzheimer’s Australia National Quality Dementia Care Initiative (NQDCI): Final Report. Centre for Health Service Development, Australian Health Services Research Institute, University of Wollongong.

Background

This project consisted of an evaluation of the National Quality Dementia Care Initiative (NQDCI), which was launched in September 2010 in Sydney at the inaugural Quality Dementia Care Summit. The Initiative provided $3 million to facilitate consumers’ engagement and generate their perspectives on dementia research priorities and processes, as well as fund a series of rapid knowledge translation projects. The aim was to address priority dementia care areas of service provision and support as identified by consumers. The Initiative aimed to strengthen the relationships within the federation of State and Territory associations of Alzheimer’s Australia, as well as with external stakeholders such as the Dementia Collaborative Research Centres, the National Partnership Centre for Dealing with Cognitive and Related Functional Decline in Older People, service providers and the Department of Health.

What we did

Our role as national evaluators was to capture both formative and summative evaluation findings. Through ongoing interaction with members of the Consumer Directed Research Network (established through the Initiative); the project teams implementing knowledge translation interventions and our work with representatives of Alzheimer’s Australia we provided early feedback and results to inform the continuing development and improvement of the program. The summative evaluation was finalised in 2014 and addressed the extent to which the National Quality Dementia Care Initiative was implemented as intended and the desired results achieved.

In summary, eight major knowledge translation projects were completed in 2013/2014 implementing evidence across a range of care settings addressing priorities that were identified by consumers. These projects were required to have a national impact, or have outcomes that had the potential to be generalisable on a national scale. The final evaluation report of the NQDCI, focusing predominantly on the activities and outcomes of the knowledge translation projects, was submitted in December 2014. It was found that the Initiative effectively demonstrated the application of consumer involvement in dementia research and knowledge translation. The most successful components were the knowledge translation projects and the establishment and sustained operation of the Consumer Dementia Research Network. The success of the projects showed that implementation obstacles could be addressed, including overcoming inter-jurisdictional boundaries and inter-sectoral barriers, and engaging diverse professional groups in collaborative quality improvement initiatives. The Consumer Dementia Research Network has worked alongside researchers and service providers to identify priorities and improve processes for collaboration and involvement of consumers in research and research translation. The NQDCI predominantly generated indirect gains for consumers, tangible and useful benefits for service providers and showed the broader aged care sector that consumers have the capacity to drive effective knowledge translation in collaboration with researchers and care providers.

More information about the NQDCI is available from the Alzheimer's Australia website.

CHSD - NQDCI 

One of the knowledge translation projects, Start2Talk, established a portal for information about dementia and advance care planning, designed from the consumer point of view to be relevant and usable by people with dementia, family carers and healthcare professionals. Image courtesy of Ambro at FreeDigitalPhotos.net

Last reviewed: 7 January, 2016

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